Let the Rare Disease Research Network (RDRN) enhance your organisation’s impact and visibility by helping transform patient priorities into feasible research projects. Access a broad network dedicated to rare diseases. Organisations can strengthen their patient and public involvement (PPI) efforts by co-creating patient-driven research with other like-minded RDRN members. Gain insights into cutting-edge developments, consult with engaged community members, learn from peer organisations, and upskill your team on co-production methods. By joining RDRN, organisations can engage with diverse stakeholders, mentor aspiring researchers, and contribute to the vital field of rare disease research, ultimately amplifying their collective efforts.
Showcase the ideas of your patient community.
Connect with a vast network of organisations committed to rare disease research.
Bolster your PPI: co-produce patient-driven research.
The RDRN offers an unparalleled opportunity for groups supporting patients and rare disease research to amplify your impact. Patients and those with lived experience know best, and RDRN is designed to empower them by turning ideas into actionable research. By joining, your group can showcase its own research initiatives, gain visibility, and connect with a vast network of individuals and organisations committed to rare disease research. Bolster your patient and public involvement (PPI) efforts through a truly patient-driven approach. You’ll also have access to researchers and other experts, alongside the opportunity to peer-learn from different groups, form strong research partnerships, and benefit from mentorship and expert resources that guide you through the co-produced research process.
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Want to learn more about cutting-edge developments in rare disease research and get involved in research? Want to bolster your patient and public involvement and engagement (PPIE)? Joining the RDRN offers public sector partners an exceptional opportunity to shape your policies and strategies effectively by directly consulting with engaged community members. RDRN provides access to the latest PPIE resources, enabling you to incorporate patient-driven approaches into your work. Engage with a diverse network of stakeholders, while having the chance to mentor aspiring researchers and gain insights from their experiences. Spread the word about RDRN and its current projects within your networks to enhance both your PPI efforts and the overall impact of our work.
JoinStay informed with the latest developments in the rare disease space and gain direct insights from patient communities about their research ideas and priorities. RDRN equips you to develop informed policies and initiatives. This rare opportunity allows public sector partners to consult directly with engaged community members in an open forum. Founded by the Patient Led Research Hub and Cambridge Rare Disease Network, RDRN is supported by trusted organisations with established networks. Join RDRN and learn about the benefits of patient-driven research. RDRN is de-risking patient-driven initiatives to make the research space more equitable.
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