The Rare Disease Research Network (RDRN) is an inclusive platform that supports individuals in forming like-minded teams, providing the chance to collaborate, innovate, and drive meaningful change. Whether you aim to align your work with patient-driven priorities, pioneer your own research, or develop solutions for the rare disease community, RDRN offers the resources, mentorship, and collaboration opportunities you need. Through partnerships and knowledge exchange, the platform empowers you to create research that truly reflects the needs of those with lived experience, revolutionising rare disease research through patient-driven initiatives.
Showcase your research ideas to an engaged community.
Connect with the expertise you need to co-create research.
Pioneer patient-driven research.
Are you a lived experience expert? RDRN needs you! Join a vibrant online community that empowers individuals with lived experience of rare diseases, offering you the opportunity to drive research and innovation. By joining RDRN, you’ll gain access to valuable resources, mentorship, and matchmaking tools designed to help you co-create research with experts. We prioritise patient voices, ensuring they are not only heard but that they drive the research process. Whether you’re a patient, carer, family member, or supporter, RDRN provides the accessible tools to put you in the driving seat to showcase your research ideas and transform them into impactful research.
JoinThe RDRN offers you, as a student, PhD candidate, or early-career researcher, a valuable chance to enhance your Patient and Public Involvement (PPI) knowledge by aligning your work with patient-driven priorities. You can create more impactful, relevant research while gaining unique lived experience insights from a community often underrepresented in research. Engaging with patients and those with lived experience enriches your work, making it more ethical and responsive to real-world needs, and benefitting funding applications. Through RDRN, you can collaborate with diverse stakeholders, access mentorship, and tap into valuable resources and networking opportunities. This not only strengthens your professional growth but also empowers you to deliver impactful rare disease research through meaningful, patient-driven engagement.
JoinThe RDRN offers entrepreneurs and medical technology start-ups a unique opportunity to collaborate with an engaged rare disease community from the very beginning. By co-creating ideas with patients and those with expert lived experience, you can ensure your innovations align with real-world needs, while early-stage testing with this motivated community accelerates development, saving time and resources. RDRN connects you with a diverse network of patients, researchers, and stakeholders who provide valuable insights to refine your innovations. This collaboration helps optimise product-market fit, de-risk your development process, and gives you a competitive edge in delivering patient-centred solutions for rare diseases, whilst supporting a community which is underserved in research.
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